Welcome to the website of the ESPN Registry

On this website, ESPN Registry activities and information on paediatric registries in general will be provided. The ESPN registry has been developed to increase the amount and the quality of information paediatric renal replacement therapy (RRT). We hope that this registry will lead to high quality collaborative European research projects to improve paediatric end stage renal disease patient care.

So far, the ERA-EDTA Registry has collected data on children on RRT via national or regional renal registries. The results are presented in the annual reports. In 2007, close collaboration with the ERA-EDTA, the ESPN started an additional registry specifically aiming at children and young adults on RRT. The extended ESPN Registry collects information on incidence, survival, and quality of treatment both from the ERA-EDTA Registry and from national paediatric registries. So far, data have been obtained from 24 countries (28 registries). An overview of the participating countries is given under contributors.

The first results of the ESPN registry are now available and were presented during the ESPN conference in Lyon and are shown in the first ESPN registry newsletter. We sincerely would like to thank all those who have helped contributing data.

If your country does not yet contribute data to the ESPN Registry, please let us know. To facilitate participation in the registry, we are delighted to let you know that Karlijn van Stralen has developed a database for collecting registry data on patients with established renal failure, both dialysis and transplant patients. More information regarding this database can be found under data collection. Please contact us via espn-reg@amc.uva.nl if you would like to receive a copy of the database.

We hope that this project will improve patient care in Europe.

Please support it!

Chister Holmberg, President ESPN
Jane Tizard, Chair ESPN registry
Enrico Verrina, Chair ESPN registry
Karlijn van Stralen, Coordinator ESPN registry

The The first ESPN registry newsletter and Paediatric Data for 2006 are online.	The new ERA-EDTA Annual Report is online. See pages 109 thru 113.